Why does bioethics matter?
Friday, April 24th, 2009Yesterday was the kick-off of yet another bioethics conference. From the perspective of an outsider like me–and a journalist to boot–”Ethical Issues in the Prioritization of Health Resources” seems like a hard sell. I struggle to imagine a less sexy title. (Perhaps “Academics Arguing about the Rights/Wrongs of Divvying Up Drugs and Doctors”?) But my prejudice was toppled by the following bizarre scene.

About 200 academics sat silently like parishioners in pews. Floating over their heads was a disembodied voice with a lilting Hispanic accent. It was Mexico’s Vice-Minister of Health, Mauricio Hernández, calling from his office to describe the difficult decision of how to stretch his limited budget to administer pneumococcal vaccines to his country’s children. The vaccine manufacturer recommends 3 doses, but it seemed to be more cost-effective to cut a corner from the standard of care and give only 2 doses. This is certainly the first time I’ve witnessed a politician on the phone with a packed room of academics, seeking their advice on a real-world, life and death dilemma.
Of course, deciding who should be given access to limited health resources is by definition a matter of life and death. But traditionally, philosophers who deal with the underlying ethics have not gotten their hands dirty with the real-world details. “Philosophers like us often say that we should learn about the issues from the experts who actually deal with them,” said Oxford bioethicist Roger Crisp. And rather than stopping there, “we should go on to try to make a positive difference.” This conference is supposed to be an opportunity for exactly this.
Crisp was the first speaker in a 3-man panel of academics who took the floor after the Vice-Minister. (Besides the Mexican vaccine dilemma, the conference learned about a dialysis machine shortage in Thailand and a new cancer drug that can extend life by a few months for an exorbitant cost. But more on those in a later post.) In contrast to the nitty-gritty of these real-world cases, the panelists battled it out on a very different plane–the abstract and esoteric world of moral theory. To give a sense of the flavor: Crisp added a new term to the menagerie of philosophical ‘isms (“sufficientarianism”); Alex Voorhoeve pondered whether it would be right or wrong to use a “philosophical laser” to prevent harm to one person from a plummeting meteor if not doing so would result in a greater benefit to another person; and JP Sevilla argued that redistributing people’s health (rather than money) was tricky because health is so “chunky”.
These are just caricatures of their arguments, of course. Abstraction is a necessary tool for teasing ethical issues apart. But the contrast between academic argument and real-world dilemma was dramatic. So I posed a real-world meta-question to the panel: Why does your work matter?
Voorhoeve considered his work in terms of national healthcare policies. “NICE is making some wrong decisions,” he said, referring to the ironically acronymed National Institute for Health and Clinical Excellence, the body that decides which drugs and treatments are not worth paying for in the UK. According to Voorhoeve, those decisions seem to derive ultimately from arguments made by another philosopher, All Souls don Derek Parfitt. So aside from the benefits to “mental hygiene,” he said, there are very practical reasons to get these philosophical arguments right.
With exquisite British self-deprecation, Crisp considered himself in the context of “all the philosophers over the centuries whose work is read and taken seriously.” Considering how vanishingly small that number is, he concluded, “I don’t think I matter.” But he went on to mount a poetic defense for the role of bioethics. “It’s like astronomy,” he said. The sky is filled with stars too dim to make out. “We’re trying to look deeper, helping each other to see a little farther.”
I was most touched by Sevilla’s reply. “What should I do to make the biggest difference for the benefit of all?” he wondered out loud. Public policy? Business? Even activism can have a more direct impact than academic bioethics. “The reason I do it is probably just that this is what I am best at,” he said. “Do I make a difference with these ideas?” He hopes so.
–John Bohannon


Singer has a new book out–.jpg)